The Night Before Christmas, Smith Version
Twas the night before Christmas and all through our home Were the many trappings of Dravet Syndrome The tube feeding was hung by the bed with care It's charming alarm ringing through the night air The children were nestled, all snug in the bed One with an electric blanket and a hat on her head The nebulizer was done, and so was the vest The time had come for a long winter's rest The picc line was flushed, the pump batteries changed The TPN running, the pillows arranged. And mama in her nightie and dad in his sweats Were watching Family Feud, that's as good as it gets When out of the pulse ox there arose such a clatter Mom ran back to see what was the matter Away she flew to turn the concentrator on Put on a cannula, turn off the alarm The moon shined softly on the bipap machine The Duoneb, Albuterol, and viles of saline When what to her wondering eyes came in view But a big wet diaper without any poo It was late in the evening, after her bath And m...