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  This is the house where we grew up. A brand-new house 
 in a neighborhood
 still becoming itself.   Fresh concrete curbs rounded and smooth New school. 
 New friends.
 New neighbors—
 not Mema, not cousins anymore. The smell of new wood and paint. New furniture. 
 My new room. Our new address rhymed, and mom drilled it in my head in case someone found me lost  in this new part of town  Foundations were poured around us, Wooden frames kept sprouting up, and we picked up scraps of drywall
 to make hopscotches on the street. Oh, my new baby sister! The cute yellow room prepared for her arrival.
 The bassinet.
  She was real and she was in there. Her precious face and soft hair. Black-and-white TV in the kitchen Color TV downstairs   Lying on the carpet between the console speakers To experience True Stereo Spider plants hanging in the windows.
 A magical terrarium on the coffee table. The piano with the music...

The Night Before Christmas, Smith Version

Twas the night before Christmas and all through our home Were the many trappings of Dravet Syndrome The tube feeding was hung by the bed with care It's charming alarm ringing through the night air The children were nestled, all snug in the bed One with an electric blanket and a hat on her head The nebulizer was done, and so was the vest The time had come for a long winter's rest The picc line was flushed, the pump batteries changed The TPN running, the pillows arranged. And mama in her nightie and dad in his sweats Were watching Family Feud, that's as good as it gets When out of the pulse ox there arose such a clatter Mom ran back to see what was the matter Away she flew to turn the concentrator on Put on a cannula, turn off the alarm The moon shined softly on the bipap machine The Duoneb, Albuterol, and viles of saline When what to her wondering eyes came in view But a big wet diaper without any poo It was late in the evening, after her bath And m...

Millie Saake 1925-2017

Millie (Mildred) Saake 91, of St. Louis, MO, went home to be with the Lord Saturday, October 28, 2017. She was born on June 15, 1925 in Evansville, IN, the daughter of Adam and Vera Gunn Dickman, which I found out by reading her twin sister, Mickey Margaret Estill's, obituary. Margaret died in April of this same year. Millie is survived by her 2 daughters, Phyllis and Peggy. According to her youngest daughter, Peggy, Millie did not want a funeral, any kind of service, or even an obituary. I personally feel the need to participate in something along those lines, so, this is a “Tribute”, which was not mentioned by Millie as something she did not want. :-) For the past 3 years, Millie has been my dad’s, aka Pop Pop's, roommate. As Peggy said, they made 6 years of memories in those 3 years. They were always on the go, dancing at the senior center on Arsenal on Fridays, and Whitecliff on Tuesdays.  At the Banjo Club at Concordia Turners (Thursdays) there was a special song dur...